Rare and paediatric kidney diseases
Rare kidney diseases are common, complex, and under-served. We're working to change that.
We're driving change in rare and paediatric disease research by working in partnership to:
- Fund high-quality, collaborative research
- Build strategic collaborations across academia, the NHS and industry
- Strengthen the rare kidney disease research community and infrastructure
- Accelerate translation from discovery to patient care
Collectively common: the devastating impact of rare kidney diseases in the UK
Our report revealed that more than 160,000 people in the UK are living with a rare kidney disease, many facing long delays to diagnosis and significant gaps in care.
More than 60% of children with kidney failure have a rare kidney disease, yet they can wait more than a decade longer than adults to access new treatments.
Research initiatives
Together we are working to create a clear path, from discovery science in the lab to clinical trials to transform the lives of people living with rare and paediatric kidney diseases.
Alport Research Hub
Funded by Kidney Research UK in partnership with the Stoneygate Trust, bringing together leading UK and international expertise in Alport syndrome.
Centre for Rare Kidney Diseases
The Centre for Rare Kidney Diseases will accelerate research and treatments for rare kidney diseases.
PKD Partnership
The PKD Partnership will advance scientific understanding and develop innovative treatments for polycystic kidney disease.
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If you have a question or would like further information contact: