{"id":157390,"date":"2025-05-01T09:21:10","date_gmt":"2025-05-01T08:21:10","guid":{"rendered":"https:\/\/www.kidneyresearchuk.org\/?page_id=157390"},"modified":"2026-06-09T12:39:16","modified_gmt":"2026-06-09T11:39:16","slug":"patient-involvement","status":"publish","type":"page","link":"https:\/\/www.kidneyresearchuk.org\/research\/patient-involvement\/","title":{"rendered":"Patient involvement"},"content":{"rendered":"\n<figure itemscope itemtype=\"https:\/\/schema.org\/ImageObject\">\n\t\t\t\t<img decoding=\"async\" class=\"lazyload\" src=\"data:image\/gif;base64,R0lGODlhAQABAIAAAAAAAP\/\/\/yH5BAEAAAAALAAAAAABAAEAAAIBRAA7\" data-src=\"https:\/\/www.kidneyresearchuk.org\/wp-content\/uploads\/2018\/11\/pivotal_Elizabeth_Clarke_Mimi_Hoare.jpg\" alt=\"Pivotal trial patient, Mimi Hoare, and nurse, Elizabeth Clarke\" height=\"1080\" width=\"1920\" title=\"pivotal-trial-patient-nurse\" onerror=\"this.style.display='none'\" loading=\"lazy\" \/><noscript><img decoding=\"async\" class=\"lazyload\" src=\"https:\/\/www.kidneyresearchuk.org\/wp-content\/uploads\/2018\/11\/pivotal_Elizabeth_Clarke_Mimi_Hoare.jpg\" alt=\"Pivotal trial patient, Mimi Hoare, and nurse, Elizabeth Clarke\" height=\"1080\" width=\"1920\" title=\"pivotal-trial-patient-nurse\" onerror=\"this.style.display='none'\" loading=\"lazy\" \/><\/noscript>\n\t<\/figure>\n\t<h2>Patient and public involvement<\/h2>\n<p>People affected by kidney disease bring lived experience that can improve research, policy\u00a0and communications. <\/p>\n<p>We work with patients,\u00a0carers\u00a0and families to make sure our work is shaped by what matters most to the kidney community.<\/p>\n<p>Lived experience shapes our work &#8211; not just informing what we do, but influencing decisions, driving change, and making our research better, fairer and more relevant.<\/p>\n\t<h2>Our patient involvement groups<\/h2>\n<p>We work with different patient involvement groups, depending on the type of work and the kind of experience needed.<\/p>\n\t<h3>Lay Advisory Group <\/h3>\n<p>Members help guide our work by sharing their experiences and views. The group helps make sure patient perspectives influence decisions across the charity.\u00a0<\/p>\n\t\t\t<a href=\"https:\/\/www.kidneyresearchuk.org\/research\/patient-involvement\/lay-advisory-group\/\"  target=\"_self\">\n\t\t\t\t\t\t\tMeet the LAG\n\t\t\t\t\t<\/a>\n\t<h3>Experts by experience<\/h3>\n<p>Members review research funding applications from a\u00a0lived\u2011experience perspective. This happens alongside scientific review, not instead of it.\u00a0<\/p>\n\t<h3>Policy and campaigns panel<\/h3>\n<p>Members help shape our policy and campaigning work, sharing lived experience to influence decision\u2011makers across the UK.<\/p>\n\t<h3>Marcomms insights panel<\/h3>\n<p>Members give feedback on our marketing, communications and engagement work, including campaigns, publications and health information.<\/p>\n\t\t<h3>Do you want to get involved?<\/h3>\n\t\tAre you a patient, carer or family member who wants to use your voice to improve kidney research?<br \/>\nYou can help shape our work by taking part in public and patient involvement opportunities.\n\t\t\t<a href=\"https:\/\/www.kidneyresearchuk.org\/support\/volunteer\/\"  target=\"_self\">\n\t\t\t\t\t\t\tView involvement opportunities\n\t\t\t\t\t<\/a>\n<figure itemscope itemtype=\"https:\/\/schema.org\/ImageObject\">\n\t\t\t\t<img decoding=\"async\" class=\"lazyload\" src=\"data:image\/gif;base64,R0lGODlhAQABAIAAAAAAAP\/\/\/yH5BAEAAAAALAAAAAABAAEAAAIBRAA7\" data-src=\"https:\/\/www.kidneyresearchuk.org\/wp-content\/uploads\/2019\/03\/Kidney-voices-for-research-logo_white-background.jpg\" alt=\"Kidney voices for research logo\" height=\"591\" width=\"1063\" title=\"Kidney voices for research\" onerror=\"this.style.display='none'\" loading=\"lazy\" \/><noscript><img decoding=\"async\" class=\"lazyload\" src=\"https:\/\/www.kidneyresearchuk.org\/wp-content\/uploads\/2019\/03\/Kidney-voices-for-research-logo_white-background.jpg\" alt=\"Kidney voices for research logo\" height=\"591\" width=\"1063\" title=\"Kidney voices for research\" onerror=\"this.style.display='none'\" loading=\"lazy\" \/><\/noscript>\n\t<\/figure>\n\t<h2><strong>Kidney Voices for Research<\/strong><\/h2>\n<p>Kidney Voices for Research is our online community.\u00a0It&#8217;s\u00a0a way to hear directly from researchers, learn about kidney research in clear,\u00a0easy\u2011to\u2011read\u00a0language, and see opportunities to share your views.<\/p>\n<p>Taking part is flexible &#8211; you can simply read updates, or\u00a0choose to get involved in opportunities that interest you.\u00a0<\/p>\n<p>Join our Facebook group or sign up to receive our the monthly newsletter.<\/p>\n\t\t\t<a href=\"https:\/\/www.facebook.com\/groups\/269527126833451\/\"  target=\"_blank\" rel=\"noopener\"    rel=\"noopener\">\n\t\t\t\t\t\tJoin Facebook group\n\t\t\t\t\t<\/a>\n\t\t\t<a href=\"https:\/\/kidneyresearchuk.org\/research\/patient-involvement\/kidney-voices-for-research\/sign-up-kidney-voices\/\"  target=\"_self\">\n\t\t\t\t\t\tGet enewsletter\n\t\t\t\t\t<\/a>\n\t<h2>Interested in a clinical trial?<\/h2>\n<p>Clinical trials aim to find new and improved ways to treat, manage and diagnose <a href=\"https:\/\/www.kidneyresearchuk.org\/kidney-health-information\/kidney-conditions-symptoms\/\">conditions<\/a>, including testing new drugs, new techniques and technologies and improvements to existing treatments.<\/p>\n<p>You can find more information on how to get involved:<\/p>\n<ul>\n<li>Visit <a href=\"https:\/\/bepartofresearch.nihr.ac.uk\/\" target=\"_blank\" rel=\"noopener\">NIHR Be Part of Research<\/a>\u00a0for information about clinical trials running in the UK (search for renal or kidney)<\/li>\n<li>If you live in Scotland, try\u00a0<a href=\"https:\/\/www.registerforshare.org\/\" target=\"_blank\" rel=\"noopener\">SHARE <\/a>an NHS Research Scotland initiative for people interested in participating in health research.<\/li>\n<\/ul>\n\t\n<bpor-widget distance=\"20\" query=\"kidney\" location=><\/bpor-widget>\n\n\t<h2>Got a question? Get in touch.<\/h2>\n\t<p>If you have a question or would like to chat about public and patient involvement, the team are happy to help. Please get in touch.<\/p>\n\n","protected":false},"excerpt":{"rendered":"<p>Patient and public involvement People affected by kidney disease bring lived experience that can improve research, policy\u00a0and communications. We work with patients,\u00a0carers\u00a0and families to make sure our work is shaped by what matters most to the kidney community. Lived experience shapes our work &#8211; not just informing what we do, but influencing decisions, driving change,&hellip;<\/p>\n","protected":false},"author":31,"featured_media":0,"parent":64,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_searchwp_excluded":"","footnotes":""},"class_list":["post-157390","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Patient involvement - Kidney Research UK<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.kidneyresearchuk.org\/research\/patient-involvement\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Patient involvement - Kidney Research UK\" \/>\n<meta property=\"og:description\" content=\"Patient and public involvement People affected by kidney disease bring lived experience that can improve research, policy\u00a0and communications. 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