{"id":161611,"date":"2026-04-20T09:40:44","date_gmt":"2026-04-20T08:40:44","guid":{"rendered":"https:\/\/www.kidneyresearchuk.org\/?p=161611"},"modified":"2026-04-20T09:40:44","modified_gmt":"2026-04-20T08:40:44","slug":"running-the-london-marathon-for-wife-and-daughter-affected-by-rare-disease","status":"publish","type":"post","link":"https:\/\/www.kidneyresearchuk.org\/2026\/04\/20\/running-the-london-marathon-for-wife-and-daughter-affected-by-rare-disease\/","title":{"rendered":"Running the London Marathon for wife and daughter affected by rare disease"},"content":{"rendered":"\n\n\t\t\n\t<p>A young father is running the <a href=\"https:\/\/www.kidneyresearchuk.org\/fundraising-events\/london-marathon\/\">London Marathon<\/a> to\u00a0fund\u00a0research into kidney health, after a rare\u00a0auto-immune\u00a0disease\u00a0left his wife needing dialysis and\u00a0caused\u00a0the premature birth of their daughter.\u00a0<\/p>\n<p>Leo Elbourne, 31 from London,\u00a0is determined to fund\u00a0life-changing research\u00a0for his family\u00a0and others, having experienced\u00a0the devastation caused by kidney failure.\u00a0\u00a0<\/p>\n\t<p> His wife, Chevonne, was diagnosed with a rare auto-immune condition &#8211; dense deposit disease &#8211; in 2019 and now needs <a href=\"https:\/\/www.kidneyresearchuk.org\/conditions-symptoms\/dialysis\/\">dialysis<\/a> while she waits for a transplant, after her first transplanted kidney was damaged during pregnancy. The condition caused pre-eclampsia, meaning that her <a href=\"https:\/\/www.kidneyresearchuk.org\/conditions-symptoms\/blood-pressure\/\">blood pressure<\/a> was dangerously high and their daughter was born prematurely at 28 weeks.\u00a0<\/p>\n<p>She is now 17 months old, but not yet out of the woods, and nor is Chevonne. \u00a0<\/p>\n<p>Leo, a content creator for Bible Matters, a Christian charity, says: &#8220;Chevonne dialyses at home, while our daughter needs a ventilator to support her breathing. Our bedroom is like a hospital. It has been incredibly hard, but we are so thankful to have our child. <\/p>\n<p>&#8220;We hope Chevonne will have her second transplant soon and we can enjoy a normal life.\u00a0<\/p>\n<p>&#8220;It&#8217;s really encouraging to see major research taking place in kidney medicine, and we&#8217;ve already benefitted from breakthroughs. I&#8217;m running the London Marathon to raise money for Kidney Research UK to try and secure a better future for kidney patients.&#8221;\u00a0<\/p>\n<figure itemscope itemtype=\"https:\/\/schema.org\/ImageObject\">\n\t\t\t\t<img decoding=\"async\" class=\"lazyload\" src=\"data:image\/gif;base64,R0lGODlhAQABAIAAAAAAAP\/\/\/yH5BAEAAAAALAAAAAABAAEAAAIBRAA7\" data-src=\"https:\/\/www.kidneyresearchuk.org\/wp-content\/uploads\/2026\/04\/WhatsApp-Image-2026-04-16-at-15.26.44.jpeg\" alt=\"Mum holding baby while she is feeding\" height=\"1066\" width=\"1600\" title=\"Chevonne Elbourne\" onerror=\"this.style.display='none'\" loading=\"lazy\" \/><noscript><img decoding=\"async\" class=\"lazyload\" src=\"https:\/\/www.kidneyresearchuk.org\/wp-content\/uploads\/2026\/04\/WhatsApp-Image-2026-04-16-at-15.26.44.jpeg\" alt=\"Mum holding baby while she is feeding\" height=\"1066\" width=\"1600\" title=\"Chevonne Elbourne\" onerror=\"this.style.display='none'\" loading=\"lazy\" \/><\/noscript>\n\t\t<figcaption>Chevonne and baby daughter<\/figcaption>\n\t<\/figure>\n\t<h2>Chevonne&#8217;s diagnosis<\/h2>\n<p>In 2018, with their\u00a0wedding on the horizon,\u00a0Leo and Chevonne\u00a0had no idea the tiredness and bouts of sickness\u00a0she\u00a0was experiencing\u00a0were signs of a devastating rare disease.\u00a0Doctors could not\u00a0identify\u00a0what was wrong\u00a0and it was only when Chevonne\u00a0was treated in\u00a0A&amp;E that the couple began to get answers.\u00a0\u00a0<\/p>\n<p>Leo says: &#8220;Chevonne had been experiencing swelling and during one particularly bad episode she was having difficulty breathing. Doctors in A&amp;E discovered her <a href=\"https:\/\/www.kidneyresearchuk.org\/kidney-health-information\/stages-of-kidney-disease\/\">kidney function<\/a> had dropped to just 15%. \u00a0<\/p>\n<p>&#8220;After a few weeks in hospital,\u00a0she was diagnosed\u00a0with a rare auto-immune condition.\u00a0It was a huge shock.\u00a0Sadly, Chevonne had to give up her work as a graphic designer to focus on her health.&#8221;\u00a0<\/p>\n<p>Chevonne was prescribed medication to try and manage her condition. However,\u00a0her health rapidly declined.\u00a0\u00a0<\/p>\n<p>Leo says: &#8220;We&#8217;re\u00a0thankful our wedding\u00a0day\u00a0was a\u00a0really happy\u00a0one. Chevonne was well enough to walk down\u00a0the aisle and so many\u00a0loved ones\u00a0were there to\u00a0celebrate with us.\u00a0Unfortunately, just after our return from honeymoon,\u00a0her health became critical.\u00a0<\/p>\n<p>&#8220;I woke in the night to find Chevonne having a seizure and\u00a0immediately\u00a0called for an ambulance.\u00a0She was placed in intensive care and put into an induced coma for two days.\u00a0Her kidneys had failed and she needed to start dialysis. It was\u00a0a totally new\u00a0life, one we had not envisaged or prepared for.&#8221;\u00a0<\/p>\n<figure itemscope itemtype=\"https:\/\/schema.org\/ImageObject\">\n\t\t\t\t<img decoding=\"async\" class=\"lazyload\" src=\"data:image\/gif;base64,R0lGODlhAQABAIAAAAAAAP\/\/\/yH5BAEAAAAALAAAAAABAAEAAAIBRAA7\" data-src=\"https:\/\/www.kidneyresearchuk.org\/wp-content\/uploads\/2026\/04\/WhatsApp-Image-2026-04-16-at-15.23.35.jpeg\" alt=\"Baby in a incubator and mum sitting on a chair next to her in hospital room\" height=\"1201\" width=\"1600\" title=\"Chevonne Elbourne\" onerror=\"this.style.display='none'\" loading=\"lazy\" \/><noscript><img decoding=\"async\" class=\"lazyload\" src=\"https:\/\/www.kidneyresearchuk.org\/wp-content\/uploads\/2026\/04\/WhatsApp-Image-2026-04-16-at-15.23.35.jpeg\" alt=\"Baby in a incubator and mum sitting on a chair next to her in hospital room\" height=\"1201\" width=\"1600\" title=\"Chevonne Elbourne\" onerror=\"this.style.display='none'\" loading=\"lazy\" \/><\/noscript>\n\t\t<figcaption>Chevonne and their baby daughter <\/figcaption>\n\t<\/figure>\n\t<h2>Receiving a transplant<\/h2>\n<p>At the beginning of 2020, Chevonne received a transplant from her dad,\u00a0Mark.<\/p>\n<p>Leo says: &#8220;Within days she was feeling significantly better. It was amazing. Despite the stresses of the pandemic, that was a joyful time for us.\u00a0<\/p>\n<p>&#8220;For a few years\u00a0things\u00a0felt\u00a0normal, and it\u00a0was\u00a0wonderful.\u00a0Chevonne started working again and we were living a normal life, which is a great privilege.\u00a0Although she needed IV infusions to treat a flare up of her\u00a0condition\u00a0in 2023,\u00a0this\u00a0was\u00a0successful\u00a0and we\u00a0kept\u00a0moving forwards.\u00a0\u00a0<\/p>\n<p>&#8220;Life with a new kidney opened lots of possibilities for us, including the\u00a0option\u00a0to try to start a family. When Chevonne was first diagnosed, we\u00a0didn&#8217;t\u00a0know whether we would be able to have children. However, in discussion with our consultant, we\u00a0assessed\u00a0the risks and made the decision\u00a0to\u00a0try for\u00a0a baby.&#8221;\u00a0<\/p>\n\t<h2><b>Pregnancy and kidney disease<\/b>\u00a0<\/h2>\n<p>In 2024,\u00a0Leo and Chevonne were able to share the wonderful news that they were expecting their first child.\u00a0<\/p>\n<p>Leo says: &#8220;It was amazing and everything was going really well until halfway through the pregnancy, when a blood test led us to discover that Chevonne had pre-eclampsia.&#8221;\u00a0<\/p>\n<p>Autoimmune conditions and kidney disease are two factors that can increase a person&#8217;s chance of developing pre-eclampsia\u00a0&#8211; a condition that can lead to serious complications for both mother and baby.\u00a0<\/p>\n<p>Leo says: &#8220;Chevonne was admitted to hospital for monitoring until it became necessary to deliver our baby at just 28 weeks. It was terrifying. Our daughter was about the size of my hand. She had trouble breathing and was moved to neo natal intensive care. \u00a0<\/p>\n<p>&#8220;For Chevonne, her transplanted kidney had been severely damaged by pre-eclampsia. We hoped with treatment that her kidney function would recover, but unfortunately the damage was irreversible. She became increasingly tired and it was hard to manage her health problems while also being on the neo-natal ward every day. \u00a0<\/p>\n<p>&#8220;Our daughter remained in hospital for seven months. In July 2025, she was discharged and we were able to provide her necessary breathing support at home. That was one of the happiest days of our lives. However, only a week later Chevonne was told she needed to return to dialysis. We now sleep at night between the colossal dialysis machine on our left, and our daughter&#8217;s ventilator on our right.&#8221;\u00a0<\/p>\n<p>&#8220;It has been a very difficult time, particularly for Chevonne who balances her dialysis with caring for our daughter. Additionally, Chevonne&#8217;s mum passed away recently after a long battle with cancer. We had to navigate Chevonne&#8217;s intensive treatment and our daughter&#8217;s healthcare with making sure we could spend time together before she died. Thankfully, Chevonne was able to be there at the end of her life.&#8221;\u00a0<\/p>\n<figure itemscope itemtype=\"https:\/\/schema.org\/ImageObject\">\n\t\t\t\t<img decoding=\"async\" class=\"lazyload\" src=\"data:image\/gif;base64,R0lGODlhAQABAIAAAAAAAP\/\/\/yH5BAEAAAAALAAAAAABAAEAAAIBRAA7\" data-src=\"https:\/\/www.kidneyresearchuk.org\/wp-content\/uploads\/2026\/04\/WhatsApp-Image-2026-04-16-at-15.35.48-375x500.jpeg\" alt=\"Dad is holding baby in his arms. She is facing his chest and he is kissing her head.\" height=\"500\" width=\"375\" title=\"Leo Elbourne\" onerror=\"this.style.display='none'\" loading=\"lazy\" \/><noscript><img decoding=\"async\" class=\"lazyload\" src=\"https:\/\/www.kidneyresearchuk.org\/wp-content\/uploads\/2026\/04\/WhatsApp-Image-2026-04-16-at-15.35.48-375x500.jpeg\" alt=\"Dad is holding baby in his arms. She is facing his chest and he is kissing her head.\" height=\"500\" width=\"375\" title=\"Leo Elbourne\" onerror=\"this.style.display='none'\" loading=\"lazy\" \/><\/noscript>\n\t\t<figcaption>Leo holding his baby girl<\/figcaption>\n\t<\/figure>\n\t<p>Several of Chevonne&#8217;s family and friends, including Leo, have been tested to donate a kidney. Although none have been a direct match, they have joined the <a href=\"https:\/\/www.odt.nhs.uk\/living-donation\/uk-living-kidney-sharing-scheme\/\">UK Living Kidney Sharing Scheme<\/a>. Donor and recipients join with other pairs and find a match for transplantation. \u00a0<\/p>\n<p>Leo says: &#8220;I hope I get to donate my kidney. I want to be able to show people the wonder of saving someone&#8217;s life through donation, as well as enjoy a normal life after doing it. I&#8217;d love to run the marathon this year, donate my kidney and then run again next year to prove it!&#8221;\u00a0<\/p>\n\t<h2>Running the London Marathon<\/h2>\n<p>On Sunday 26 April, Leo will join more than 50 runners fundraising for Kidney Research UK at the\u00a0<a href=\"https:\/\/www.kidneyresearchuk.org\/fundraising-events\/london-marathon\/\">TCS London Marathon<\/a>.\u00a0\u00a0<\/p>\n<p>He says: &#8220;I want to support the extraordinary research that is happening. There is real optimism about the progress that is being made in kidney health and transplantation.\u00a0<\/p>\n<p>&#8220;Marathon training is tough, especially juggling it with looking after Chevonne and our daughter. However, I can&#8217;t wait to complete the race and meet them at the finish line to celebrate.&#8221;\u00a0<\/p>\n<p>Support Leo&#8217;s fundraising:\u00a0<a href=\"https:\/\/2026tcslondonmarathon.enthuse.com\/pf\/leo-elbourne\">Kidney Research UK: Leo (hopefully) runs a marathon<\/a>\u00a0<\/p>\n<h2>\n\t\t\tReal life stories and the latest research news\t<\/h2>\n\t\t<h2>Why not make a donation now?<\/h2>\n\t\t<p>Every \u00a3 counts towards transforming treatments for people living with kidney disease.<\/p>\n\t\t\t<a href=\"https:\/\/kidneyresearchuk.org\/support\/donate\/\"  target=\"_self\">\n\t\t\t\t\t\t\tDonate now\n\t\t\t\t\t<\/a>\n\n","protected":false},"excerpt":{"rendered":"<p>A young father is running the London Marathon to\u00a0fund\u00a0research into kidney health, after a rare\u00a0auto-immune\u00a0disease\u00a0left his wife needing dialysis and\u00a0caused\u00a0the premature birth of their daughter.\u00a0 Leo Elbourne, 31 from London,\u00a0is determined to fund\u00a0life-changing research\u00a0for his family\u00a0and others, having experienced\u00a0the devastation caused by kidney failure.\u00a0\u00a0 His wife, Chevonne, was diagnosed with a rare auto-immune condition &#8211;&hellip;<\/p>\n","protected":false},"author":3,"featured_media":161612,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_searchwp_excluded":"","footnotes":""},"categories":[31,30],"tags":[425,379],"class_list":["post-161611","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-fundraising","category-patient-stories","tag-dense-deposit-disease","tag-tcs-london-marathon"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Running the London Marathon for wife and daughter affected by rare disease - Kidney Research UK<\/title>\n<meta name=\"description\" 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