Lay advisory group lead<\/strong><\/p>\n“In April 2023, I got very suddenly ill, with a rare auto-immune condition called anti-GBM disease. The disease destroyed my kidney function in a matter of weeks leaving me on haemodialysis. I was extremely fortunate to get a transplant from my wife after a year on.<\/p>\n
This life changing event made me resolute to want to help in any way I can. In particular, I want to use my role in the lay advisory group to help ease the mental health burdens that kidney patients can suffer from; dialysis can be a lonely and confusing treatment. Moreover, I am keen to leverage my career in the city to help foster partnerships, so that Kidney Research is well funded and best placed to make the maximum impact from its research.<\/p>\n
Finally, I want the impact of kidney disease on peoples lives to better understood. I have seen firsthand that this is an incredibly misunderstood area and often kidney patients appearing “fine” can be very misleading.”<\/p>\n\n\t\t\t\tFez Awan<\/h2>\n “I was born with chronic kidney disease, and I have had three kidney transplants in my lifetime so far and I have used all modalities of dialysis. I also have to manage a skin condition called Hidradenitis suppurativa.<\/p>\n
“I have multiple volunteering roles to help support and advocate for patients, some being NHSBT Organ Donation Ambassador and Chair of Renal Patient Led Advisory Network (RPLAN). As I was born with kidney failure, I have found many ways to manage and adapt to different treatments at different points of my life, which have affected friendships, aspects of isolation, and education, to name a few things.<\/p>\n
“Chronic kidney disease can really affect you mentally just as much as physically, but together as a community I feel we can all support each other, and break down barriers where and when needed.”<\/p>\n\n\t\t\t\tAma\u00a0Basoah<\/h2>\n Bio coming soon!<\/p>\n\n\t\t\t\tChris Bosworth<\/h2>\n Chris, an aviation management consultant from Surrey, had no reason to think anything was wrong when a routine blood test unexpectedly changed his life. Aside from the occasional back ache he’d put down to getting older, he felt completely well. But further checks revealed a 7cm tumour in his right kidney.<\/strong> <\/p>\n\n\t\t\t\tJelina\u00a0Berlow-Rahman<\/h2>\n “I have been a kidney transplant recipient since December 2009 after a diagnosis of Systemic Lupus Erythematosus (SLE) in 1997.\u00a0 I am now the Senior Director of Berlow Rahman Hassan Ltd, having established my own law firm whilst on haemodialysis.<\/p>\n
“I have competed in the transplant games where I have met wonderful athletes that do not allow their transplant define them.\u00a0 I spend my time being involved with Kidney Research UK through fundraising, being an ambassdaor and helping with the the peer educator program, along with supporting other charities and organisations working with asylum seekers and refugees and helping to empower women.”<\/p>\n
Jelina is also gaining her karate belts, plays tennis, and enjoys on her fine arts. She is a mum and a wife.<\/p>\n\n\t\t\t\tMelina Frieland<\/h2>\n “I joined the group to champion and advocate for children, young adults living with kidney disease. I am the mother of a now young adult kidney transplant recipient who has lived through the full journey – from initial diagnosis of a rare kidney disease at a very young age, dialysis (both PD and HHD) to the long wait for transplantation.<\/p>\n
“My eldest son lives with ASD, ADHD and Tourette syndrome I therefore have a vested interest in advocating for improvements in paediatric mental health support. I am passionate about offering thoughtful and balanced insights into the lived experiences of families and carers affected by kidney failure and have a strong desire to see meaningful and continued improvement in paediatric care, including ascertaining and resolving inequalities in treatment pathways, care and transplantation.<\/p>\n“I believe that all research, where appropriate, should be mindful and inclusive of the younger generation and this is something that I will continue to challenge.”\n\n\t\t\t\tClaire Gaulier<\/h2>\n “My son was diagnosed with hydronephrosis during pregnancy in 2020. This led us to becoming patients of Evelina Children Hospital in London where he was diagnosed with posterior urethral valves, causing reflux and damage to his bladder and therefore leading to him having chronic kidney disease.<\/p>\n
“I am a parent who is always looking for information and connections, to learn how best to support our son in managing his health condition. I bring experience as full-time working mum for a global, nonprofit, humanitarian aid organization that supports emergency medical services, with experience in programming, operations as well as grants and contracts. I am delighted to join the Lay advisory group to support the organisation.”<\/p>\n\n\t\t\t\tMatt Harding<\/h2>\n “I was diagnosed with mesangiocapillary glomerulonephritis (MCGN) in 2017 at the age of 26, presenting as rapidly progressive glomerulonephritis. Over the course of just three months, my kidney function declined from over 60% to 4%, and I required haemodialysis for four months alongside intensive medical treatment.<\/p>\n
“Following this treatment, my kidney function recovered enough for me to come off dialysis, and I have not required it since. My kidney function currently sits at around 25-35%, although I have recently experienced a relapse of my MCGN. Alongside my kidney disease, I have also been diagnosed with multiple linked health conditions that require constant treatment.<\/p>\n
Having lived with kidney disease and experienced both dialysis and recovery, I have seen first-hand the impact that research and effective treatments can have. I am passionate about using my lived experience as part of the Lay Advisory Group to help support and shape further kidney research, ensuring that patient perspectives remain at the heart of it.”<\/p>\n\n\t\t\t\tColette McLaughlin<\/h2>\n “I was diagnosed with renal failure in 2016. Over the years I have experienced kidney treatments in France and the UK including peritoneal dialysis and haemodialysis, a failed transplant and I’ll soon be mastering home haemodialysis. This has given me a good understanding of the treatments and the impacts they can have on a patient’s life and their sense of self.<\/p>\n
“I currently work full time as an engineering manager within the nuclear industry and I hope I can use the skills I’ve learned through my career and my time as a kidney patient to bring value to Kidney Research and improvements to patient care.”<\/p>\n\n\t\t\t\tOliver Mason<\/strong><\/h2>\n“I was diagnosed with IgA nephropathy in 2010 after initial appearance of symptoms. Over time, my disease stage has advanced, and vascular thromboses have become common: so my range and dose of medications have very much increased.<\/p>\n“As a psychologist I tend to think about the emotional and mental impact of illness in addition to the physical or medical ones. My own is no exception – we all cope very differently with the different challenges that chronic disease can bring at any stage of life. I currently teach clinical psychology to university students after a career in both clinics and research. Having conducted health-related research studies I know the importance of research to bring about new clinical developments, change societal attitudes, raise the profile of rare conditions, and a host of other benefits – not least to its participants.\n“I have been in several medical trials for my condition and it never fails to teach me something that I didn’t know. Patient and public involvement is key to the success of all research so that the questions it addresses are relevant and important; so that its conduct is ethical and productive; so that its message and dissemination is effective for societal change.”\n\n\t\t\t\tStephanie Nicoll<\/h2>\n “I have always admired the work that Kidney Research UK does and have had the privilege and pleasure of being involved in lots of the of fundraising activities. It’s this reason I applied to join the Lay advisory group, the work this group are doing to strengthen patient and public involvement within the charity really appealed to me and I was keen to play my small part in amplify the voices of patients.<\/p>\n
“For the past nearly three decades I have had a very rare form of kidney disease that only impacts 1-2 people in a million, diagnosed at just 14 with Mesangiocapillary Glomerulonephritis (now redefined as C3 Nephropathy). I have experienced all the stages of kidney disease not once but twice, I reached end stage kidney disease in 2014 and my husband donated his kidney to me, unfortunately I experienced reoccurrence of my original disease in my transplanted kidney and nearly a decade later I reached end stage kidney disease again and will require another transplant in the future.<\/p>\n
“Kidney disease doesn’t define me, and I strongly believe it’s made me more grateful for the life I have, the people I spend it with and the experiences I have. I live a very full and happy life as step-mum to my two stepdaughters, fur baby mum to my two fluffy dogs Bailey and Buttons and wife to my real-life hero and life saver Gordon. When I’m not with family I’m fulfilling my purpose in life working as Head of Diversity, Equity and Inclusion for a major brand. I love travelling, self-care, pampering and inspirational quotes – my favourite being “Be the change you want to see in the world”. I believe we can all play a part in creating positive change in the world and my hope is one day our combined efforts may help us to collectively end kidney disease once and for all.”<\/p>\n\n\t\t\t\tCarla Thompson<\/h2>\n “One of the problems with kidney disease is symptoms are very vague; feet swell in the heat, people often say they are tired, have a headache or bruise like a peach. So at the age of 22 it didn’t occur to me I was poorly until I found blood in my urine. I don’t think it really sunk in how ill I was, but I was diagnosed with a kidney condition called MCGN and started dialysis at aged 26. I started on haemodialysis and eventually moved on to peritoneal (CAPD).<\/p>\n
“Initially, I was too ill for a transplant but was fortunate to receive a kidney from my mum at the age of 29. I am one of the lucky ones for whom transplant was like a light being switched back on, I was warm for the first time in years and felt truly alive.<\/p>\n
“Over 20 years on and the kidney is still behaving, and mum’s remaining kidney is working brilliantly. Working with the Lay Advisory Group is a great opportunity to put my patient lived experience to good use. I am particularly interested in rare kidney diseases and improving research inclusion.”<\/p>\n\n\t\t\t\tAngela Watt<\/h2>\n “I am Angela and I come from a family where five generations have been affected by a genetically inherited kidney disease. I was diagnosed with chronic kidney disease in 2014 and began peritoneal dialysis in 2025.<\/p>\n
“Before retiring I also spent 20 years working as a renal nurse with experience in haemodialysis and kidney diseases of the complement system. I have recently completed a six year term as a patient trustee at Kidney Research UK and now look forward to continuing my involvement as part of the Lay Advisory Group.”<\/p>\n\n\t\t\t\tSally\u00a0Woodward<\/h2>\n “I am excited and honoured to be part of this important group representing the patient\/carer perspective. I have relied on and supported Kidney Research UK for more than 25 years now – whilst supporting my daughter, both practically and emotionally, since she was diagnosed with CKD at aged four.<\/p>\n
“My own career journey comprises (in chronological order):\u00a0 lawyer; academic and teacher; Director of knowledge, learning and service quality for an international law firm; external change management consultant; and the last fourteen years as a leadership coach. I have developed along the way a fascination with science and scientific method that complements my experience in legal and management research and research design.<\/p>\n
“Now with more time to call my own, I want to do whatever I can to help deliver on our collective goal that ‘kidney disease ends here’.”<\/p>\n\n","protected":false},"excerpt":{"rendered":"
Meet our lay advisory group Our lay advisory group (LAG) drive and strengthen patient and public involvement within Kidney Research UK and\u00a0 influence change externally. They ensure kidney patients are a key aspect in all of our work. Swaroop Kadambari Lay advisory group lead “In April 2023, I got very suddenly ill, with a rare…<\/p>\n","protected":false},"author":3,"featured_media":0,"parent":157390,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_searchwp_excluded":"","footnotes":""},"class_list":["post-68509","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"\n
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![\"Swaroop](\"https:\/\/www.kidneyresearchuk.org\/wp-content\/uploads\/2026\/06\/Untitled-design-2026-06-02T143221.695-250x250.png\" "\\"Swaroop")
![\"Fez](\"https:\/\/www.kidneyresearchuk.org\/wp-content\/uploads\/2024\/03\/Fez-Awan-250x250.jpeg\" "\\"Fez")
![\"Ama](\"https:\/\/kidneyresearchuk.org\/wp-content\/uploads\/2021\/11\/Ama_Basoah-250x250.jpg\" "\\"Ama")
![\"Man,](\"https:\/\/www.kidneyresearchuk.org\/wp-content\/uploads\/2026\/06\/IMG-20260414-WA0001-250x250.jpg\" "\\"Chris")
![\"Jelina](\"https:\/\/kidneyresearchuk.org\/wp-content\/uploads\/2019\/04\/Jelina_Berlow_Rahman_low_resolution_20110111-250x250.jpg\" "\\"Jelina")
![\"Melina](\"https:\/\/www.kidneyresearchuk.org\/wp-content\/uploads\/2025\/12\/Melina-250x250.jpg\" "\\"Melina")
![\"Claire](\"https:\/\/www.kidneyresearchuk.org\/wp-content\/uploads\/2024\/02\/Claire-G-250x250.jpg\" "\\"Claire")
![\"Matt](\"https:\/\/www.kidneyresearchuk.org\/wp-content\/uploads\/2025\/12\/Matt-Harding-250x250.jpg\" "\\"Matt")
![\"Colette](\"https:\/\/www.kidneyresearchuk.org\/wp-content\/uploads\/2024\/03\/Colette-McLaughlin-250x250.jpg\" "\\"Colette")
![\"Oliver](\"https:\/\/www.kidneyresearchuk.org\/wp-content\/uploads\/2025\/12\/Oliver-250x250.jpg\" "\\"Oliver")
![\"Stephanie](\"https:\/\/www.kidneyresearchuk.org\/wp-content\/uploads\/2024\/03\/Stephanie-Nicoll-250x250.jpeg\" "\\"Stephanie")
![\"Carla](\"https:\/\/www.kidneyresearchuk.org\/wp-content\/uploads\/2024\/03\/Carla-Thompson.jpg\" "\\"Carla")
![\"Angela](\"https:\/\/www.kidneyresearchuk.org\/wp-content\/uploads\/2025\/12\/Angela-250x250.jpg\" "\\"Angela")
![\"Sally](\"https:\/\/www.kidneyresearchuk.org\/wp-content\/uploads\/2025\/12\/Sally-250x250.jpg\" "\\"Sally")