Patient and public involvement
People affected by kidney disease bring lived experience that can improve research, policy and communications.
We work with patients, carers and families to make sure our work is shaped by what matters most to the kidney community.
Lived experience shapes our work - not just informing what we do, but influencing decisions, driving change, and making our research better, fairer and more relevant.
Our patient involvement groups
We work with different patient involvement groups, depending on the type of work and the kind of experience needed.
Lay Advisory Group
Members help guide our work by sharing their experiences and views. The group helps make sure patient perspectives influence decisions across the charity.
Experts by experience
Members review research funding applications from a lived‑experience perspective. This happens alongside scientific review, not instead of it.
Policy and campaigns panel
Members help shape our policy and campaigning work, sharing lived experience to influence decision‑makers across the UK.
Marcomms insights panel
Members give feedback on our marketing, communications and engagement work, including campaigns, publications and health information.
Do you want to get involved?
Are you a patient, carer or family member who wants to use your voice to improve kidney research?
You can help shape our work by taking part in public and patient involvement opportunities.
Kidney Voices for Research
Kidney Voices for Research is our online community. It’s a way to hear directly from researchers, learn about kidney research in clear, easy‑to‑read language, and see opportunities to share your views.
Taking part is flexible - you can simply read updates, or choose to get involved in opportunities that interest you.
Join our Facebook group or sign up to receive our the monthly newsletter.
Interested in a clinical trial?
Clinical trials aim to find new and improved ways to treat, manage and diagnose conditions, including testing new drugs, new techniques and technologies and improvements to existing treatments.
You can find more information on how to get involved:
- Visit NIHR Be Part of Research for information about clinical trials running in the UK (search for renal or kidney)
- If you live in Scotland, try SHARE an NHS Research Scotland initiative for people interested in participating in health research.
Got a question? Get in touch.
If you have a question or would like to chat about public and patient involvement, the team are happy to help. Please get in touch.