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Routine blood test gave doctors opportunity to treat my kidney cancer
An aviation management consultant from Surrey has received successful surgery to remove a tumour, after a routine blood test led to a diagnosis of kidney cancer. Chris Bosworth, 58, displayed no obvious symptoms before his cancer diagnosis, meaning the tumour was unlikely to have been identified without a routine annual blood test at his GP surgery. He says: “I’d get a little bit of back ache when mowing the lawn or washing up, but I just…
Testing new therapies for children with autosomal recessive polycystic kidney disease
Professor David Long from University College London Great Ormond Street Institute of Child Health has received a Kidney Research UK paediatric and rare diseases research project grant of £200,000 to test new therapies for autosomal recessive polycystic kidney disease (ARPKD) that focuses on how cysts use energy. This project forms part of the PKD Partnership, led by Kidney Research UK and the PKD Charity. New treatments are…
Walking in memory of beloved mum 20 years after losing her to kidney disease
This July, 59-year-old Rachelle Temple will take part in the Kidney Research UK London Bridges Walk for the 19th time, in memory of her mum, Betty, who died 20 years ago from kidney disease. Rachelle, from Hockley in Essex, will be joined by several family members, including her daughters, Nicole and Jessica. She says: “They were only ten and eight when Mum died. Her grandchildren…
Teenage kidney patient opens-up about life as a young person on dialysis
A kidney patient from Hackney, London, is speaking out about what it is like to be a young adult on dialysis, as he tries to help others feel less isolated. Since being diagnosed with chronic kidney disease as a baby, 18-year-old Delano Joseph-Myers has experienced two failed kidney transplants, spending more than half his life as a dialysis patient. As he waits for…
Vital funding allocated to kidney research
Kidney Research UK is set to receive almost £1m to expand the UK’s renal research capabilities by attracting and retaining more scientists and clinicians. The money, from the National Institute for Health and Care Research, is part of a new package of £37m funding being awarded to 89 medical research charities in the UK to support early career researchers. The funding will enable the charity to boost interest in working in renal…
SMC accepts sparsentan for adults living with IgA nephropathy in Scotland
Kidney Research UK has welcomed the Scottish Medicine Consortium’s acceptance of sparsentan (Filspari ®) for use in some adults in Scotland living with primary immunoglobulin A nephropathy (IgAN), published today. The SMC decision takes into account patient views gathered by Kidney Research UK through a focus group, and those expressed at a Patient and Clinician Engagement (PACE) meeting at which Kidney Research UK’s patient expert Mark Devlin talked about his lived experiences of the condition. “I would have loved to have had a treatment that would…
Exceptional kidney advocate champions early diagnosis and organ donation
A kidney transplant recipient who spent ten years on dialysis, is now dedicating her time to spare others from a lifetime of challenging treatments. Hilaria Asumu, from Manchester, has made it her mission to raise awareness of kidney disease, becoming a community ambassador and blood pressure volunteer with Kidney Research UK. Ever since receiving her own transplant in…
My kidney failure was mistaken for laziness
A carer from Hull found herself labelled as ‘lazy’, when she was left exhausted by an undiagnosed condition which caused her kidney function to deteriorate. Eso Osagiede Signs of kidney disease Eso Osagiede, 39, says: “I was always sleepy as a teenager into early adulthood. But what nobody realised was that I was fatigued because my kidneys were failing. I now recognise several signs from my childhood that, with more awareness, could have been identified long before…
Undiagnosed chronic kidney disease endangers millions of lives
Millions of people worldwide are at risk because chronic kidney disease (CKD) is going undiagnosed, according to global research being unveiled this week. Former Kidney Research UK fellow, Dr Jennifer Lees has led an international collaboration on the research being published in The Lancet and shared at the European Renal Association conference in Glasgow. Their…
Teenage Newcastle United fan feels support of local community after shock kidney failure
A 14-year-old boy from the Northeast has been overwhelmed by the support of his local community – including a visit from Newcastle United players, Joelinton and Kieran Trippier – as he learns to live with kidney disease. Charlie Denholm, from Washington, Tyne and Wear, found himself needing dialysis treatment after his kidneys unexpectedly failed just before Christmas last year due to a genetic form…